Understanding Thalassemia
Thalassemia is an inherited blood disorder that affects the body's ability to produce hemoglobin and healthy red blood cells.
People with thalassemia produce either no or too little hemoglobin, which is used by red blood cells to carry oxygen around the body. This can cause anemia, leaving you fatigued.
If you have mild thalassemia, you might not need treatment. But more severe forms might require regular blood transfusions. You can take steps to cope with fatigue, such as choosing a healthy diet and exercising regularly.
Types of Thalassemia
Alpha Thalassemia
Occurs when one or more of the four alpha globin genes are missing or mutated. The severity depends on how many genes are affected.
- Silent Carrier State (1 gene affected)
- Alpha Thalassemia Trait (2 genes affected)
- Hemoglobin H Disease (3 genes affected)
- Alpha Thalassemia Major (4 genes affected)
Beta Thalassemia
Occurs when one or both of the two beta globin genes are mutated. The condition ranges from mild to severe.
- Beta Thalassemia Minor (1 gene affected)
- Beta Thalassemia Intermedia (moderate)
- Beta Thalassemia Major (Cooley's anemia)
Recognizing Thalassemia
Fatigue
Feeling tired or weak due to low hemoglobin levels
Pale Skin
Paleness or yellowish skin color
Slow Growth
Delayed growth and development in children
Abdominal Swelling
Enlarged spleen or liver
Dark Urine
Darker colored urine due to red blood cell breakdown
Facial Bone Changes
Bone deformities especially in the face
Can Thalassemia Be Prevented?
Thalassemia is an inherited condition, so it cannot be prevented. However, with proper genetic counseling and testing, couples can make informed decisions:
Genetic Testing
Blood tests can determine if you carry thalassemia genes
Prenatal Testing
Tests during pregnancy can detect thalassemia in the fetus
Genetic Counseling
Professional guidance for families affected by thalassemia
How We Help
Blood Support
Regular blood transfusions for thalassemia patients through our donor network
Medical Aid
Financial support for medications and medical treatments
Community Support
Connecting patients and families with support groups
Awareness Campaigns
Educational programs to spread awareness about thalassemia
Help Support Thalassemia Patients
Your blood donation or financial contribution can save lives. Join us in our mission to help thalassemia patients.